29th February 2024, worldwide.
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed every year on 28 February (or 29 in leap years) – the rarest day of the year. Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organisation partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.
Though Rare Disease Day is patient-led, everyone, including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policy makers, industry representatives and the general public, can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention.
By Sharing your colours via social media, events, illuminating buildings, monuments and homes, by sharing experiences online and with friends, by calling on policy makers and shining the light on people living with a rare disease, collectively we aim to change and improve lives of the 300 million people worldwide.
This website helps patient organisations, patient advocates, and other interested in campaigning for equity for rare diseases to identify resources and promote campaign events.
Published in GI-Mail 02/2024 (English edition).
- Do you already know our monthly newsletter GI-Mail with useful tips on postgraduate courses?
Sign up here. - Are you looking for vacancies or new career challenges? Here you will find the latest vacancies and job offers.
- Do you already know our monthly job-information GI-Jobs with current job offers for doctors, managers and nurses? Sign up here.
- Are you interested in up to date postgraduate courses and CME? In our education database »medicine & health« you will find new education events from over 2300 organizers.
